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MID-ATLANTIC “ENTOURAGE” BRINGS YOUNG VOLUNTEERS TO JOHNS HOPKINS

Entourage offers younger volunteers the opportunity to make a difference in the lives of  peers living with illnesses.


Entourage offers younger volunteers the opportunity to make a difference in the lives of peers living with illnesses.

A unique collaboration between Chai Lifeline Mid-Atlantic and Johns Hopkins Medical Center is integrating young volunteers into Chai Lifeline while creating exciting programs for children battling a number of medical conditions.

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Camp Simcha Girls Repeat the March of Hope

Camp Simcha's March of Hope gave 400 campers and staff a chance to celebrate life and survivorship.

Camp Simcha’s March of Hope gave 400 campers and staff a chance to celebrate life and survivorship.

A new generation of girls fighting cancer marched over the Brooklyn Bridge in a celebration of life, joy, and hope.

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Mothers’ Programs Offer Needed Respite, Care, Friendship

Dedicated retreats and events help mothers weather the non-stop stress of parenting an ill child.

Dedicated retreats and events help mothers weather the non-stop stress of parenting an ill child.*
*Photo for illustrative purposes only.

Faye R. was in a constant state of exhaustion. There simply weren’t enough hours in the day to care for a child with a chronic illness. When her daughter Rachel was well enough to go to school, the after-school hours brought an endless round of physical, occupational, and speech therapy. Medications and special food requirements took hours to fulfill. Illness meant trips to the doctor or even hospitalization. Rachel’s three siblings needed attention and care, too.

“After a while, I didn’t even have words to describe it anymore,” she lamented. read full story

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Paws of Love Helps Children Emerge From Their Shells

Interacting with pets has physical and emotional benefits for children with illnesses.

Interacting with pets has physical and emotional benefits for children with illnesses.*
*Photo used for illustrative purposes only.

In the spring of 2016, Eli was diagnosed with a serious chronic disorder. As the realities of his new life, one where he would be more restricted in his movement, sunk in, he became more withdrawn. Concerned, they confided their worries to their Chai Lifeline West Coast case manager. read full story

Becky is looking forward to her first summer at Camp Simcha.

For Becky and Family, Camp Simcha Awaits

Becky is looking forward to her first summer at Camp Simcha.

Becky is looking forward to her first summer at Camp Simcha.*
*Photo for illustrative purposes only.

Eight months ago, Becky B. was diagnosed with Ewings Sarcoma, a rare cancer that attacks bone and surrounding tissue. Since then, the 13-year-old’s life has centered around hospitals and painful treatment. The one bright spot has been the support of Chai Lifeline, whose volunteers and professionals have “adopted” the family, filling their lives with light during a very dark period.

This summer, Becky is going to Camp Simcha, Chai Lifeline’s overnight camp adventure for children with cancer and other life-threatening or chronic illnesses and disabilities. She can’t wait, and neither can her family. read full story

Finding enjoyable outlets -- like Chai Lifeline's Family Camp Adventure-- is one way that parents can refresh their minds and bodies.

6 Ways To Take Care of Yourself When Parenting a Sick Child

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From the moment you wake up until the time you rest your head upon your pillow at night, your day is filled with the responsibilities of caring for your sick kid (or sick children!), and their brothers and sisters. Treatment, therapy, medical appointments, or school issues, not to mention the day to day necessities of taking care of a home and making a living. As you haul that last load of laundry up the stairs or fall into bed at night, you find yourself wondering, “When is it time for ME?”
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help your teen with chronic illness become independent and treatment-compliant

5 Steps to Take To Nudge Your Teen With Chronic Illness to Take Responsibility For Her Health

Adolescence is a time when parents of teens with chronic illnesses or medical challenges may want to tear their hair out.

Adolescence is the period where teens need to psychologically move away from their parents and become more independent. Many times, teens will push limits to see how far they can go.
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Parents can take concrete steps to help brothers and sisters thrive despite the illness of a sibling.

Fitting Everyone In: Raising Healthy Siblings When a Child is Ill

When a child is born or diagnosed with a serious illness, brothers and sisters are bound to be impacted. Why do some exhibit signs of stress or depression while others seem to thrive?

Siblings living alongside a child with a chronic illness will experience a jumble of positive and negative reactions. They can feel love and a combination of resentment, embarrassment, guilt, sorrow or fear simultaneously. Without the skills to understand and cope, a child’s self-esteem can suffer. Anger and guilt can turn inward, leading to a sense of shame or worthlessness. Depression, anxiety or somatic symptoms can arise.
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New Video Shows That There Are No Limits to What Sick Kids Can Do.

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Despite having lost both his legs to illness, Benji maintains there are no limits to what he will accomplish in life.

 

Too often, our default emotion when we hear about childhood illness is pity. It’s natural to feel awful when confronted with the reality of pediatric illness, but does it really reflect how children with illnesses see themselves?
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Does Your Child Qualify for SSI Benefits?

We welcome this contribution from Deanna Power of Social Security Disability Help. Please note that we cannot answer any questions about specific situations. Please address all questions about eligibility or how to apply to help@disability-benefits-help.org.

SSI offers financial relief to families living with serious pediatric illness.

SSI offers financial relief to families living with serious pediatric illness.

It is almost a law of nature that a child’s illness impacts a family’s income. Medical bills, time off from work, extra housekeeping or childcare needs add up quickly. SSI (Supplemental Security Income), a program administered by the Social Security Administration (SSA) provides some relief for families through monthly financial assistance to parents of children with life-threatening or severe chronic illnesses.
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